Little wonders and big trouble

Sorry i havent posted for a while, but i have been busy busy busy, we took a family trip to Fiji for one weekend, it was for a family affair, the wonder is how she had managed to get on top of the 9ft high entertainment center. She pulled out the wireless box and hid it in her toy chest. Apperantly she didt like the flashing lights on the box. She was just laying around when i got home, i wondered why her television program wasnt on. Usually she watches a program on sky 1 its a fijian channel we get. I asked her what happend to the internet and she didnt respond, she hasnt been responding lately becuase she gets to a point where she says 1 word and then regresses back again. I forgot what the word is where they hit a certain point in comprehension and stop. So she is stuck with the comprehension of about a 4 year old is what the doctors told us.

Autism and the non believers

sigh... she came up to me with the tap to talk program and her pecs explaining how someone didn't believe that she had a regression and had become more severe. i dont tell anyone except people i dont know what she has. so i know that she was telling someone all the things i tell her she has well so she has classic autism or kanners with regression seizures mental retardation and plateau with a few other things like slight dyslexia well when she was little she was completely severe then she learned to talk when she was 7 and she talked until last year when she hit the severe regression. so basically you couldn't tell something was wrong with her except if you looked closely because she had much intervention. now they tell her not to talk 5 specialists and a lot of therapists well she hit a regression so she got worse she cant talk in front of people anymore, also she had severe seizures a few month ago that messed up her brain petty badly so that made it harder to function for her. also the plateau they told me is when she cant learn anymore from that point because her brain has had enough. and this is at that point for her right now. yes she can dress herself and use the bathroom herself, but she has S.I.B.  that doesn't mean she is high functioning. yes she can understand many thing and can hear them but it takes her a minute to process it and sometimes she will hear it and look but her brain will just process it in sounds so she will look and hear but may not actually hear the words. other times her brain will say that she doesn't hear it at all. she also has sensory issues when her brain wont filter things so everything comes in at once and sounds are too loud and lights are too bright. she told me with cards that someone told her that because before she talked a lot and did a lot of stuff so this was just emotional but that is wrong because she has had this all her life. they even tested emotional aspects all of them but they came up as that they didn't affect her. every autistic child is different. even a another person who has an autistic child cant believe that she has what she has.  please comment on this and tell me what you think.

Just dance

Today My stepdaughter who is autistic was dancing to some music. It was rather quite funny, she was jumping around and Even fell over one time. Later today I will try to post the video up on my blog. I think you will like it a lot. These are the days that make us very happy to see because we don't get many days when she is like this.

Autism Everyday

hello sorry i havent posted recently. but i am back. i took my daughter to the mall to get some shoes. she really didn't like being there but then we went to the vans outlet. she got two pairs, one is red and black the other is white and black. after that she was trying to play her games on the iphone and again on the ipad but she isn't really good at games any more ever since the regression. when we got home i turned on the music channel and there was a song called buzzin on and she was dancing to it until she fell over. after that we helped walk her to her room and turned on the lava lamp and she was staring at it for about an hour until she fell asleep.  we had to put it up high so she wouldn't grab it and burn herself or pull it over.   now we also got a new binder for her pecs cards. her old one got too small. it was dark green and the new one is lime green. 

Leg Braces

she has been having seizures, alot  of them and the grand mals were so bad and so long that they has killed the cells in her brain that know how to walk. now she has afo leg braces and has to hold on to some ones wrist just to walk. she can only go a few steps at a time on her own then she falls.they said this cannot be reversed and will not get better. sigh, autism and its challeges

Seizure And Hospital

she has seizures yes and usually they are not intense just very mild, so mild you may not notice them, she had only had a big one tonic clonic or grand mal, this happened again last night so she is in the hospital then we had to deal with sib self injurious behavior. oh what a day and night

who invented sleepwalking

my stepdaughter slept walk up the stairs but didn't exactly make it back down again she cried all night cause it hurt.but seriously who came up with this. there must have been some recognition of it in the past./ maybe they thought a demon was in the person or  something. like the Indians, what did they think ,  oh strong leaf is walking in sleep again or what seriously, why dos my daughter have to have this, it worries me that one day she might walk onto the main road by our house and get hit. please watch over us and protect us god, please any who read this pray for my daughters autism. thank you .    momms